Sunday, November 22, 2009

Dr. Bell to Lecture Dec. 6 in NY -- Tickets Available

Lecture on XMRV and CFS/ME/Fibromyalgia

Public Lecture, December 6, 2009 in Batavia, NY on XMRV and ME/CFS

Because time is getting near, I wanted to give an update on the XMRV lecture in Batavia on December 6, 2009. I have received many letters saying that they did not want to drive from Toronto or Syracuse if there would not be tickets available. So we have put together a way to buy tickets on the website. Actually, "we" is not appropriate as I am computer illiterate. Debbie in our research group has been working with Carrie, our webmistress (who donates all her activities, by the way).

So the lecture will be from 2 pm to 5 pm at the Holiday Inn of Batavia NY (8250 Park Road, Batavia, NY 14020), right next to the NY State Thruway. Tickets may be purchased via the web site. (

If one wishes to stay at the Holiday Inn, there will be rooms available at the reduced rate of $72 double and $92 suite.  Holiday Inn guarantees the room rate if booked by November 23rd. After that it's back to regular rates. Specify: Lyndonville Research Group.  Click here to make your reservations.

The cost at the door the afternoon of the lecture will be $15. I have absolutely no idea of how many persons will be coming, and the Hotel needs an estimate. They can accommodate up to 400 persons with advance notice.

I do not want to get people's hopes up too high. Officially I will say that the association between XMRV and CFS/FM/ME is "being studied and has not been proven". I will have no new information on treatment, just ideas of where this may go. We will not be taping the lecture as it is expensive and I expect the material is likely to change rapidly over the next six months. Material will be presented from the Science paper, Dr. Dan Peterson's testimony at the CFS Advisory Committee meeting, our hopes for a study to help confirm these findings, and lots of interesting stuff.

Research Trials

This material is taken from a WPI announcement. Clinical trials will likely be an important direction for the future, but do not expect results quickly.

New treatment strategies for immune modulation and antiviral strategies have been successfully developed for chronic inflammatory disease over the last decade. Each of these drugs has had to undergo extensive investigation before obtaining approval for general use.

A critical need is sub grouping the spectrum of neuro-immune disease in order to stratify patients according to the appropriate therapy. The current translational and clinical research studies at WPI have clinical trials as endpoints. While WPI currently has no open clinical trials, when trials are initiated they will offer patients the opportunity to participate in clinical trials that are designed to test the effectiveness of new forms of therapy. Clinical trials are voluntary, and our team will only involve patients who are entirely comfortable with the process.

Another critical need is a comprehensive database of patients with information on your diagnosis, conditions, family health and similar items. You can help by completing the research questionnaire and including your information for our researchers to study.

All clinical trials conducted here at WPI are approved and closely monitored by the University of Nevada's Institutional Review Board (IRB). No WPI staff have any financial interests or holdings in the various pharmaceutical companies who produce drugs used to treat chronic diseases.

If you would like to be considered for participation in current or upcoming clinical trials, and include your information in our research database, please complete this research questionnaire-

For more information, please contact:

Research Program Coordinator
Whittemore Peterson Institute
6600 N. Wingfield Parkway
Sparks, NV 89436

Tax Deductible Contributions to Lyndonville Research Group

If you wish to make tax deductible contributions to the Lyndonville Research Group, please mail your checks to:

The Connecticut CFIDS and FM Association, Inc.
PO Box 3010
Milford, CT 06460


Checks must be made out to THEM. In the "memo" should be written "Dr. Bell's Research".  Then they will mail us 100% of the donation.


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Disclaimer: Any medical advice that is presented in the Lyndonville News is generic and for general informational purposes only. ME/CFS/FM is an extremely complex illness and specific advice may not be appropriate for an individual with this illness. Therefore, should you be interested or wish to pursue any of the ideas presented here, please discuss them with your personal physician.


© 2009 David S. Bell


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