Sunday, October 25, 2009

Reeves Must Go

  From: RESCIND <>

  ***Please distribute far and wide!***

  Support the 500 Professionals of
  the IACFS/ME - Reeves Must Go

  On May 27th and May 28th, 2009, the Chronic
  Fatigue Syndrome Advisory Committee (CFSAC)
  convened in Washington, D.C. Among their
  recommendations to the Secretary of Health and
  Human Services was a call for new and progressive
  leadership at the CDC's ME/CFS research division.

  We, the public, need to back the IACFS/ME and the
  CFSAC. Under Bill Reeves' regime, funding has
  routinely decreased and increasingly broad
  definitions which have ceased to have any clinical
  meaning or research value have been implemented.

  Under Reeves' direction the CFS program is being
  slowly strangled.

  A couple of weeks ago, Dr. Judy Mikovits, who is a
  retrovirus expert at the Whittemore Peterson
  Institute, released the results of a study which
  provided overwhelming evidence that xenotropic
  murine leukemia virus-related virus, or XMRV, could
  very well be the third human retrovirus.

  Mikovits found that in a study of 101 CFS patients,
  67% were found to have XMRV in their cells, but this
  is really not new news. In 1991 Dr. Elaine Defreitas
  found retroviral DNA in 80% of her study's 30 CFS
  patients. The CDC "replicated" her study, did not
  follow her exact procedure, and ended the study
  prematurely while ostracizing Defreitas.

  What does Reeves say about Mikovits recent
  discovery? Without doing any study or due diligence
  Reeves dismisses the findings by saying that they
  are "unexpected and surprising" and that it is
  "almost unheard of to find an association of this
  magnitude between an infectious agent and a
  well-defined chronic disease, much less an illness
  like CFS."

  Deceit and incompetence have increasingly become
  the order of the day. The money that Bill Reeves has
  been receiving has been terribly mismanaged as he
  desperately strives to forestall the slow but
  inevitable pace of biomedical research.

  Inappropriate management of funds prevents
  collaboration with biomedical experts, as well as
  collaboration with psychosocial experts who are not
  trying to build a career in psychosomatic medicine.
  Bill Reeves must be held accountable.

  Inaccurate stereotypes persist because Bill Reeves
  has not been accurately educating the public on the
  seriousness of this disease.

  CFS is not a disease of "feeling a little tired," no
  matter what you call it; this is a severe neuro-
  immune disease of among other things, debilitating
  exhaustion completely out of proportion to exertion.
  Patients may be too exhausted to even be able to
  chew their food, leave their beds and much less even
  work - and remain so year after year. Is that your
  neighbor's experience of tired?

  Perhaps you suffer from CFS, perhaps your patients
  do, or perhaps a loved one does; your best interests
  are not and have not been at the heart of the CDC's
  program. What's at the heart of the program is job
  security for Bill Reeves, his paycheck and
  collaboration with his pals - not finding ways to
  combat and track this horrible disease.

  We need you now more than ever. Right now is the
  first real chance that we have had in nearly 30 years
  to fight Reeves in force; to fight for you, your loved
  ones, or your patients. Everyone from researchers to
  advocates are in agreement - Reeves must go. And
  we must make it happen. No one will do it for us.

  Join members of the IACFS/ME at the CFSAC's
  October 29-30th meeting in Washington, D.C. Do not
  let the hard work of other advocates and researchers
  over the years be for nothing. We need to show that
  we cannot be silenced and we will never give up.

  If you cannot personally attend, find someone to
  attend in your place. Ask your parents, your children,
  your spouses or friends to attend in your place. Ask
  your elected officials to have aids attend.

  The answer is always no if you don't ask - we must
  make it happen - none of us can live with the

  Reeves must go.

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