to the Centers for Disease Control and Prevention (CDC), a call was
received from Sarah Wiley, the Associate Director of Policy at the center that
houses the CFS program. The posting that had our name as one of the
organizations that provided input into the CFS 5-Year Strategic Plan will be
removed sometime today, she said.. We also discussed that the CDC is not
addressing Myalgic Encephalomyelitis (ME) and she understood that was "a bigger
concern" and she hopes to address that eventually. (The CDC stated, in their
"Overview of CFS" that neither CFIDS or ME should be confused with ME and
the National CFIDS Foundation is referring to ME with their name of CFIDS.
Currently, it has no diagnostic code in the United States making the diagnosis of ME impossible in this country.)
For better health for all those with CFIDS/ME,
President, National CFIDS Foundation, Inc.
103 Aletha Rd.
Needham, MA 02492-3931