Wednesday, September 23, 2009

CDC to make correction!

In response to a letter and e-mail that the National CFIDS Foundation  sent
to the Centers for Disease Control and Prevention (CDC), a call was 
received from Sarah Wiley, the Associate Director of Policy at the center that 
houses the CFS program.  The posting that had our name as one of the 
organizations that provided input into the CFS 5-Year Strategic Plan will be 
removed sometime today, she said..  We also discussed that the CDC is not 
addressing Myalgic Encephalomyelitis (ME) and she understood that was "a bigger 
concern" and she hopes to address that eventually.  (The CDC stated,  in their
"Overview of CFS" that neither CFIDS or ME should be confused with ME  and
the National CFIDS Foundation is referring to ME with their name of  CFIDS. 
Currently, it has no diagnostic code in the United States making  the diagnosis of ME impossible in this country.)

For better health for all those with CFIDS/ME,

Gail Kansky
President, National CFIDS Foundation, Inc.
103 Aletha Rd.
Needham, MA 02492-3931 

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