Saturday, December 20, 2014

Study Provides More Evidence that Gulf War Illness and CFS/ME are different

 
 
Our analysis identified a group of cytokines that identified ME and GWI cases with sensitivities of 92.5% and 64.9%, respectively. The five most significant cytokines in decreasing order of importance were IL-7, IL-4, TNF-α, IL-13, and IL-17F. When delineating GWI and ME cases from healthy controls, the observed specificity was only 33.3%, suggesting that with respect to cytokine expression, GWI cases resemble control subjects to a greater extent than ME cases across a number of parameters. 
These results imply that serum cytokines are representative of ME pathology to a greater extent than GWI and further suggest that the two diseases have distinct immune profiles despite their overlapping symptomology.
 
 

Thursday, December 18, 2014

The Unbreakable Laura Hillenbrand - NYTimes.com

 
 
One peculiarity of chronic fatigue syndrome is the degree to which it can remain invisible: A patient may be in excruciating pain without showing any outward sign of illness. There is still no simple laboratory test for the disease, nor any way to confirm its diagnosis. There is even some debate over what to call it. Many doctors and patients, including Hillenbrand, believe the words "chronic fatigue" sound trivial. They prefer the term "myalgic encephalomyelitis," or M.E., which refers to inflammation in the brain and spine. Other doctors resist this name, questioning whether patients with the disease reliably exhibit this inflammation. Dr. Charles Shepherd, a medical adviser to the ME Association in Britain, told me that decades of mystery around the illness have only worsened the suffering of victims. "I was taught at medical school 40 years ago that this was all hysterical nonsense," he said. "It was an illness which was either ignored, or dismissed, or regarded with extreme skepticism."

Friday, December 12, 2014

Inexpensive Internet for Disabled/Seniors

Logo of DOnetwork.
DOnetwork News Alert posted on December 11th, 2014 at 1:53pm:


Free Internet Hotspots with Low Monthly Service Cost for People with Disabilities, Seniors and Returning Veterans


Take Action Today: Deadline December 15, 2014!

The Digital Access Project and Basic-Internet.com are providing free hot-spots to eligible people with disabilities, seniors and returning veterans in California! People who do not currently have internet service at home are eligible and the monthly service charge is only $10.90 per month.

To get a free hot spot and see if you are eligible for monthly service at this rate contact:

Kim Hogan, Digital Access Project Coordinator
Phone: (916) 325-1690,
Email: kimhogan@cfilc.org
In-Person (Sacramento): California Foundation for Independent Living Centers, 1234 H Street, Sacramento, CA 95814, please call Kim Hogan in advance to set up a time from 9am to 4pm.

The Digital Access Project also holds regularly scheduled digital literacy training sessions for new Internet and computer users â€" you can get your hot spot at one of these upcoming trainings too!

DECEMBER EVENT DETAILS
When:
Wednesday, December 10th, 11th and 13th Starts at 10 AM
Where:
Sacramento Food Bank & Family Services
Education & Technology Center
3308 Third Ave
Sacramento, CA 95817
Who:
Sacramento Food Bank & Family Services and Digital Access Project training staff and people receiving free hotpots

Not near Sacramento?  That’s OK, we have community partners across California! CLICK HERE for a list of partners and locations, and be sure to scroll down and click on the logo's for our partners for more information.

To learn more about eligibility for the free hot-spots and affordable Internet service, please call 800-390-2699. Deadline to apply for free hotspots is December 15, 2014. Please note: The free hot-spots are not available at www.basic-internet.com.

“The best gift possible is giving someone affordable Internet at home,” said Kim Hogan, Digital Access Program Coordinator. “We are thankful for the donation of free hot-spots from Basic-Internet.com. This generous gift will help people with disabilities, seniors and low-income families get online to improve the quality of their lives.”

Basic-Internet.com offers high-speed residential Internet service to the general public, starting at $10 per month, with some restrictions. Typically, other Internet service providers charge as much as $70 a month. Louis Flores of Elk Grove is one of the first to get a free hotspot, which normally retails for about $89.00, and is signing up for the $10 a month plan. “The Internet has been unaffordable for me. Now my sons can look for work from home without having to go to the library and my daughter will not have to stay late at school to finish homework in a computer lab,” Flores said. “And my wife and I can use free online telephone services to talk to our families in Mexico. This is the best gift I could imagine.”

The Digital Access Project is a program of the California Foundation for Independent Living Centers (CFILC).

About California Foundation for Independent Living Centers
The mission of CFILC is to increase access and equal opportunity for People with Disabilities by building the capacity of Independent Living Centers. For more information, visit www.cfilc.org. The Digital Access Project is a program that supports people with disabilities in getting Internet services at a lower cost and digital literacy training. For more information, visit www.digitalaccessproject.org.


To read the article source, click here:
http://digitalaccessproject.org/


Disability Organizing Network - DOnetwork

California Foundation for Independent Living Centers
1234 H Street, #100 • Sacramento, CA 95814 • 877-427-0387 / 800-900-0706 TDD
Non Profit 501(c) 3 • Fed Tax ID: 94-2838242

Thursday, December 11, 2014

Sunday, December 7, 2014

Obituary: Dr. Erich Ryll, 93, early expert on chronic fatigue syndrome

 
Dr. Erich D. Ryll, a physician who investigated a mysterious outbreak of symptoms at a Sacramento area hospital as a pioneering expert on chronic fatigue syndrome, died Nov. 26 of complications from an intestinal illness, his family said. He was 93.
 

A former Army physician, Dr. Ryll opened a private practice in 1968 as an infectious disease specialist in Sacramento. He was chief of medicine at Mercy San Juan Hospital in late summer of 1975 when more than four dozen nurses became ill with acute symptoms, including severe leg pain, headaches, fatigue and nausea. The condition eventually spread to about 200 hospital workers and family members, according to news stories in The Sacramento Bee.

Mercy officials asked Dr. Ryll to investigate the outbreak, which also drew a state epidemiologist and an official from the U.S. Centers for Disease Control to the Carmichael hospital. Tests for viruses and toxins came back negative, leaving experts puzzled and in disagreement about a possible cause, including employee stress.

After scouring medical journal reports about similar clusters of cases in other countries, Dr. Ryll argued that the condition was caused by a virus that lies dormant in the body until activated by other factors. He treated more than 100 Mercy workers in one of the first Northern California outbreaks of what is now commonly known as chronic fatigue syndrome.

Because it is a complex disorder that cannot easily be diagnosed or explained by an underlying medical condition, chronic fatigue syndrome historically has faced a lack of understanding or familiarity in the medical community. Dr. Ryll treated many patients who found no answers or support from other physicians, his son Erich Jr. said. He testified on behalf of Mercy employees seeking workers' compensation benefits, which hospital administrators opposed.

"That was his job," his son said. "He was a highly ethical person, and he would never throw anyone under the bus for his own gain. He taught us as kids that even if it comes to a sacrifice to your own well-being, you have to do what's right."

A son of German immigrants, Dr. Ryll was born in 1921 in Lorain, Ohio. After serving in the Army in Morocco and Italy during World War II, he graduated from Valparaiso University and earned a master's degree in microbiology and a medical degree from the University of Kansas.

He rejoined the Army in 1958, completed a research fellowship at Walter Reed Army Institute of Research and worked as a physician and researcher. He left the military in 1967 and worked at Kaiser Permanente in Sacramento.

Dr. Ryll, who retired from medicine in his mid-80s, was a fitness enthusiast and avid bicyclist. He founded the Physicians Cycling Group of Sacramento in 1974 and led rides from Sacramento through high passes in the the Sierra Nevada to Nevada and Yosemite National Park. He also sang in the Sacramento Symphony Masterworks Chorus and a Bach choir.

"He had a beautiful, rich bass voice," his son said. "He sang all his life."

Dr. Ryll was preceded in death by a daughter, Dorthea, and a son, Thomas. In addition to Erich Jr., he is survived by his wife of 72 years, Marjorie; a daughter, Eda Mathews; two sisters, Tabea and Gertrude Stephen-Hancko; five grandchildren; and two great-grandchildren.

A memorial service is set for 11 a.m. Monday at Town & Country Lutheran Church, 4049 Marconi Ave., Sacramento. In lieu of flowers, donations may be made to the Alzheimer's Association.

Editor's note: Previous online versions of this story incorrectly listed Tuesday as the day of Dr. Ryll's memorial service. The service is Monday, Dec. 8. We regret the error.


Read more here: http://www.sacbee.com/news/local/obituaries/article4248996.html#storylink=cpy


Read more here: http://www.sacbee.com/news/local/obituaries/article4248996.html#storylink=cpy

Saturday, December 6, 2014

Jason's research on Lack of Knowledgeable Doctors

Lori Chapo Kroger reports:

It took 2 years to get it published, but we did it! Here is the article co-written with Dr. Leonard Jason, "Lack of Knowledgeable Healthcare Access for Patients with Neuro-endocrine-immune Diseases." If you participated in PANDORA Org's, 2012 survey, you helped make this research possible. Thank you! http://www.vkingpub.com/Journal/FCM/421.html

* * *

It doesn't matter how good your health insurance is when your doctors are clueless.  They don't know how to diagnose it.  They don't know how to treat it.  And it's easier for them to convince themselves that the patient is a faker than to accept that they don't know everything.

 

 

 

 

 

Tuesday, December 2, 2014

Hospital Errors Drop, Saving 50,000 Lives: Government - NBC News

U.S. hospitals mistakenly kill as many as 180,000 Americans a year, according to government estimates. That's beginning to change.

 
 
 
 

5 Ways to Get Free E-books for the Kindle, Sony, IPad and Others

Because the only thing better than a book is a FREE book. 
If you don't have a Kindle, you can download the FREE Kindle for PC app at Amazon and read on your computer.