Wednesday, May 17, 2017

Write about your bad experience

You and Me Magazine will pay $125 for your first-person essay about your experiences as a patient

Write about your bad experience

You and Me Magazine will pay $150 for your first-person essay about your experiences as a patient

Friday, May 12, 2017

"Happy" ME/CFS Awareness Day

Once again, it's May 12, time to bang our heads against the wall trying to convince the world that CFS is not just depression or laziness.
Once again, it's May 12, time to cross off another year of living without a cure -- if you can call what we do "living" ... it's merely existing, taking up space, using oxygen, wishing that we could do something productive.
But this year there's some hope -- you can donate here Registration to fund mitochondrial research into CFS.  Mitochondrial dysfunction is why we're constantly tired.  They're finally looking into something useful instead of wasting research money on psychiatric explanations that do nothing to help us.
This is my 30th year of being sick.  I'd like to see 30 people donate in honor of my wasted life.  We are (of course) Team CFS.

Wednesday, May 10, 2017

Donate for CFS Research

DONATE FOR RESEARCH:  -- we are Team CFS Facts
Scroll down past the walk registration lines on the form and there's a line for additional donation. 

Tuesday, May 2, 2017

ME Awareness Month -- California Legislature


Action Alert! California residents call your state Senator today and ask them to support SCR-40 Myalgic Encephalomyelitis Awareness Month. We are heading for a vote in 10 days and need their support. Use our easy step-by-step guide here:


Saturday, April 29, 2017

Fundraiser and 5K Tropical Run for mitochondrial disease May 20 - T

Fundraiser for research into the mitochondrial component of CFS.
Team CFS Facts should be listed shortly if it's not there already. 

Wednesday, March 22, 2017

A Biomarker for Chronic Fatigue Syndrome (ME/CFS)? Immunosignature

"It suggested that some sort of core immune reaction was taking place in ME/CFS."

Sign the Petition to keep long-term care

Repealing the ACA and slashing Medicaid would leave millions of families unable to afford in-home care.

This plan will make it harder for millions of Americans to afford long-term care -- whether at home or in a nursing home -- and eliminate incentives to keep that care high-quality and community-based. It puts everyone who needs care at risk.

Sunday, March 19, 2017

Getting It Wrong on Chronic Fatigue Syndrome - The New York Times

by Julie Rehmeyer and David Tuller
Critiquing the PACE trial,
"According to a 2015 report from the Institute of Medicine, now the National Academy of Medicine, even minimal activity can cause patients prolonged exhaustion, muscle pain, cognitive problems and more."