The newest research about living with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (ME/CFS)/fibromyalgia, with personal observations
(the most pertinent parts of long articles will be highlighted for the reader)
On March 4, 1988, I was diagnosed with Post-Viral Syndrome, which CDC soon decreed had to be referred to by the silly name "Chronic Fatigue Syndrome". My symptoms definitely traced back to a severe flu-like illness with a 105 fever for several days in mid-February 1987.
Despite relapses and increasing symptoms, I continued to work full-time as a legal secretary/paralegal -- even when I had no Quality of Life because I had to spend every non-working hour in bed so I could work the next day -- until February 2000, when months of severe sleep disturbance and ever-increasing symptoms (due to sleeping 2 hours or less a night due to the pain) cost me my job.
The doctors and judge didn't want to hear about failed attempts to return to work; they just assumed I don't want to work. "Don't confuse me with facts, my mind is already made up."
Since ADA will not force an employer to provide the accommodations I need, I started my own business so I could lie down whenever I needed to. I do proofreading and editing from home.
Visit www.CFSfacts.org or CFS Facts at YahooGroups or on Facebook if you want to learn the truth behind the myths.
Fat gives us energy, produces necessary hormones, insulates our bodies from cold, and makes cellular membranes. Fat provides the fuel for muscles, including those in vital organs like the heart. Unfortunately, fats have really gotten a bad reputation in our culture.
Low-fat and low-calorie diets have been all the rage for at least a couple of decades.
Clever marketing specialists promise weight loss and improved health, but this ploy has contributed to things like fibromyalgia, heart disease, chronic fatigue, and type 2 diabetes.
Research out of The National Institute of Health has shown that even though our consumption of fat and cholesterol have declined over the last several years, there has actually been an average of a 10-pound weight gain per person in America.
To learn more about how a low fat diet could be contributing to your weight gain and health issues, CLICK HERE.
On Sat, Jun 2, 2018 at 10:37 PM, Tom Kindlon wrote: > The full ruling is here: > <https://cases.justia.com/federal/district-courts/new-jersey/njdce/2:2015cv06197/323449/44/0.pdf?ts=1527932072> > > On Sat, Jun 2, 2018 at 10:31 PM, Tom Kindlon <email@example.com> wrote: >> Ex-Reporter Prevails In ERISA Suit Against Prudential >> >> By Adam Lidgett >> >> Law360 (June 1, 2018, 5:33 PM EDT) -- A New Jersey federal judge sided >> with a former Washington Post science reporter with chronic fatigue >> syndrome Thursday in his Employee Retirement Income Security Act suit >> against Prudential Insurance Company of America, which had dropped his >> short-term disability benefits and denied his bid for long-term ones. >> >> [..] >> >> Among other things, the judge said that none of the professionals >> Prudential most relied on to review Vastag's records show they have >> any expertise in CFS. She said the reviewers seemingly either weren't >> aware of, or rejected, just how significant a major mark of the >> disease is — post-exertional malaise. >> This condition, the judge said, means that people with CFS who try to force themselves to function actually make themselves worse in the process. >> >> <https://www.law360.com/articles/1049513/ex-reporter-prevails-in-erisa-suit-against-prudential->
We are thrilled to announce that Unrest is in the running for the 2017-18 Independent Lens Audience Award! It was an honor to have Unrest premiere on PBS | Independent Lens this past January and it would mean the world to us if we could count on your support for this award-- after all, this film was especially made to serve audiences like you.
Voting for the Audience Award opens today Monday, June 18th and ends on Friday, June, 29th, 2018 at 1 PM Pacific Standard Time. Cast your vote now!
If you found solace in watching Unrest, if you felt seen, if Unrest moved you or your friends, family, neighbors to greater understanding and empathy, please vote and encourage others to vote as well.
Winning this award would mean renewed interest in Unrest and therefore, further visibility for Myalgic Encephalomyelitis. Let's keep elevating ME every chance we get until the neglect and stigma are gone for good.
"Hot Areas in ME/CFS Research: 2018" presented by Anthony L. Komaroff, MD, Simcox-Clifford-Higby Professor of Medicine at Harvard Medical School and Senior Physician at Brigham and Women's Hospital Anthony L. Komaroff, MD, provides the latest installment of "Hot Areas In ME/CFS Research: 2018".
With increased momentum in research over the past two years, this webinar is a timely update to his popular presentation from our 2016 series that addressed current understanding of the role of various systems – including the brain, energy metabolism, genes, and immune system – in the pathophysiology of ME/CFS.
The American ME and CFS Society, a 501 (c)(3) nonprofit, has launched a Crowdrise campaign to raise funds for emergency aid for patients in financial crisis. Many patients are disabled and unable to work. Assistance at the right time can go a long way. AMMES' mission is to help patients and their families in practical ways. This is one of them. Please donate what you can!
If AMMES manages to raise 3000 dollars through this campaign, we will be eligible for a Community grant of 25,000 dollars. All of this grant will go into our crisis fund.
This is the description that appears on Crowdrise:
"Between 836,000 and 2.5 million Americans suffer from ME/CFS. One quarter of these patients are severely ill, and are either bedbound or housebound. Severely ill patients are unable to work, and many are denied disability. The financial crisis generated by a loss of income coupled with rising costs of medical care can force patients to forego necessary care and medication. In some cases, patients may even lose their homes and end up living in cars. In order to assist patients in need, AMMES is setting up a crisis fund to provide one-time grants to patients for specific needs. The funds can be used to purchase a wheelchair, pay a medical bill, hire home care, secure adequate housing, and other basic needs. All applicants will be required to provide written medical confirmation of their diagnosis, proof of financial need, and document the specific purpose of the grant. Where possible, a phone interview will be conducted. (Some severely ill patients cannot speak.) Any patient within the United States and its territories is eligible."