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There are many myths about Chronic Fatigue Syndrome and Fibromyalgia. This is where you can come for the facts.

CFS is a debilitating illness involving symptoms and abnormalities of the immune system, circulatory system, central nervous system, and hypothalamic-pituitary-adrenal axis. - Dr. Katrina Berne

Fibromyalgia is a systemic dysregulation of the neurotransmitters, with many biochemical causes.- Devin Starlanyl, M.D.

It is not the patients who are disturbed, it is the physicians who are psychologically disturbed because they ignore the data. - Muhammed B. Yunus, M.D.

The name "Chronic Fatigue Syndrome" was selected by a small group of politically motivated scientists. Their deliberate intention was to obfuscate the nature of the disease by placing it in the realm of the psychiatric rather than the organic. The harm they have caused is surely one of the great tragedies of medicine. - Hillary J. Johnson

Historically, illnesses are attributed to temperament when science lacks, or refuses to seek, answers.- B.F. Synhorst, M.S.W.

Avoid the labels "somatizer", "hypochondriac", "neurotic" and "crock". All symptoms have origins and should be taken seriously.- Dr. Katrina Berne

Just because standard testing shows normal values does not always mean everything is fine. It may simply mean that the proper tests have not been run. - Devin Starlanyl, M.D.

In 100% of disabled CFS patients, Dr. A. Martin Lerner documented T-wave abnormalities and suggests that the Holter results should be part of the diagnostic criteria.

WHAT CFS IS NOT:
psychological in origin or unwillingness to work!

WHAT CFS/FMS IS:
CFS represents the final common pathway for multi-factorial disorder with a limbic system encephalopathy causing autonomic dysfunction and subtle neuroendocrine derangements.
- Jay Goldstein, M.D.

CFSFacts is creating one of the most extensive, complete and comprehensive website for CFS information on the internet!

We suggest you join our Yahoogroup and Forum, and that you register as a user on our Wiki which is growing daily with articles, links, information, personal stories and more.

If you want to contribute to our efforts, please email us at:

submissions@cfsfacts.org

We aim to have all submissions added to the website within 14 working days!

Check out our web host's rates for hosting of websites run by people who have CFS-related disabilities. It's well worth the cost!

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients must go to Congress with advocacy needs that have not been met by the CDC or NIH. The link below will lead you to a proposed Request for Congressional Action for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

We are presenting it for anyone who wants to use it. This action is for the May 12 Awareness Day, but also to carry out through the year 2006.

We are requesting you to send it to your Congressional Representative and Senators. We think that Congressional intervention is necessary because of the sad state of affairs in the areas of research, medical treatment, and public awareness of the severity of this disease.

Below are the links to the letter you can send to your Congressional Representative or Senator. It is available in three formats - Word Document (Win97/Win2003), PDF Format (latest version) or as a standard html page (for you to link to from your own website!).

If you require the letter in a format not listed above, please contact the web mistress at WebDiva@cfsfacts.org.

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Copyright 2005-2008 CFSFacts. All rights reserved. CFSFacts is an awareness organisation that campaigns for better understanding of this disability. The information on this website is not intended to replace advice of a doctor. CFSFacts, Minuet Internet Services and any content providers on this website disclaim any liability for the decisions you make based on this information.

This site does not provide medical or any other health care advice, diagnosis or treatment. The site and its services, including the information above, are for informational purposes only and are not a substitute for professional medical advice, examination, diagnosis or treatment. Always seek the advice of your physician or other qualified health professional before starting any new treatment or making any changes to existing treatment. Do not delay seeking or disregard medical advice based on information on this site. Medical information changes rapidly and while CFSFacts and its content providers make efforts to update the content on the site, some information may be out of date. No health information on CFSFacts, including information about herbal therapies and other dietary supplements, is regulated or evaluated by the Food and Drug Administration and therefore the information should not be used to diagnose, treat, cure or prevent any disease without the supervision of a medical doctor.

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